NPR Interview With Catherine Guthrie

Women’s health journalist Catherine Guthrie, whose groundbreaking article in Cosmopolitan blew the lid off of flat denial, was just featured on NPR talking about her own story and about the struggle that women face getting our wishes respected and our needs met. And as you can see, she’s wearing her Not Putting on a Shirt t-shirt for the feature photo!

From the NPR interview:

There’s… a long history of women being treated dismissively by the medical establishment…

That this [flat denial] happens on a regular basis is an abomination, it’s a violation.”

– Catherine Guthrie, speaking with NPR

Thank you Catherine, for being such a strong voice for women!

Stay tuned later this month for an additional NPR feature!

Pink Lotus Breast Center: Flat Denial is “Unthinkable”

Wise words from the digital platform of esteemed breast surgeon, author of “Breasts: An Owner’s Manual,” founder of the Pink Lotus Breast Center and the Pink Lotus PowerUp Online Community, and special guest on the October 2nd Today Show segment on flat denial, Dr. Kristi Funk:

“According to Dr. Kristi Funk, breast cancer surgeon and author of the bestselling book, Breasts: The Owner’s Manual, it is unthinkable that a surgeon overrules a patient’s clear directives arrived at after careful consideration. Choosing to live flat causes absolutely no harm and there is no reason for any surgeon to feel conflicted about this operation.

Most plastic surgeons never talk to their patients about opting out of reconstructive surgery. If you feel that your surgeon is resisting your choice to go flat and fabulous and is trying to coerce you into breast reconstruction surgery, don’t try to convince him or her otherwise – find another surgeon. You should not have to feel that you need to defend your choice to live flat. Remember that this is your body and you have the power to choose how you wish to live after breast cancer surgery.”

Going Flat: Saying No to Breast Reconstruction, PinkLotus.com

Setting aside the fact that so many women aren’t even informed that going flat is a viable option, which is totally unacceptable in itself… I’d like to thank Pink Lotus for publishing this powerful statement.  The group of people that will be most instrumental in putting an end to flat denial, is breast surgeons.  These are the surgeons that perform most mastectomies, and they are the primary surgical professionals that most breast cancer patients will see during their treatment.  It is the breast surgeons who hold the power to inform patients of their surgical options.  And it is the breast surgeons who can ensure that patients who say no to reconstruction are given an acceptable flat result – if they do not have the technical skill to perform the closure themselves, they can bring on a plastic surgeon.

Breast surgeons are our allies in this fight.  Most would never even consider leaving a patient with an unacceptable mastectomy result.  And I’m sure it’s shocking for competent, conscientious professionals to see the “handiwork” of their less skilled and/or less ethical colleagues.  The fact is: flat denial is happening.  It’s happening all over the US and beyond.  It’s happening despite patient’s crystal clear directives, despite patients taking extraordinary self-protective measures like bringing witnesses to consult.  And it happens despite patients, like Kim, bringing on a plastic surgeon solely to do a flat closure. Because right now, no one is holding surgeons accountable.

That is changing.  As awareness of flat denial spreads, so does the impetus for every conscientious medical professional to speak out and protect patients.  Thank you Pink Lotus, for lending your voice. 

Together, we WILL put an end to flat denial.

Word Continues to Spread through the Surgical Community

“We know that surgeons who perform breast surgery are also held accountable by their patients… This is kind of an uncomfortable place for us to be as breast surgeons.”

– Oncoplastic surgeon Dr. Colleen Murphy, speaking at a University of Colorado conference (September 24, 2018)

Word is spreading surprisingly quickly through the surgical community – our advocacy efforts are making a difference! Women who choose to go flat after mastectomy will NOT tolerate being treated as second-class citizens whose bodies, choices, and quality of life are irrelevant, any longer. Thank you to everyone who has participated in Not Putting on a Shirt‘s public protests and to those who have volunteered their time and energy with us.

Not Putting on a Shirt founder Kim Bowles was featured in a University of Colorado oncoplastic surgery presentation on September 24th (just published mid-October).  Oncoplastic surgery is cancer surgery using specialized techniques to improve the cosmetic result.  Watch on YouTube here (Kim is at minute 6:19).

Also of note is the study referenced which showed a clear correlation between post-op asymmetry (i.e., a poor cosmetic result following lumpectomy) and poorer quality of life.  Women who choose to go flat after mastectomy also experience this effect, but we don’t currently have data to quantify that, because until now we have not been able to successfully and publicly articulate as a community that we deserve acceptable cosmetic results just as our sisters who opt for breast mound reconstruction do.    Not Putting on a Shirt‘s (non-scientific) 2018 survey‘s preliminary results show that most surgeons treat their flat patients ethically.  But it’s that small minority of surgeons who are willing to cross the line and perpetrate flat denial, who must be held accountable for their actions.

Dr. Murphy’s characterization of the reception of this message by surgeons as one of discomfort is both unsurprising and deserved.  It should be uncomfortable to acknowledge that it’s apparently common practice to override the clear directives of mastectomy patients who decide against reconstruction.

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Women who choose to go flat deserve acceptable cosmetic results.  Surgeons must be held accountable for treating us with the same honesty, dignity, and respect afforded to our sisters who choose to reconstruct.  Let’s be clear that there are two types of flat denial:

  1. Flat denial through lack of skill can be fixed with simple HONESTY – if a surgeon can’t produce a decent flat result, it’s hir duty to be forthright about that fact, and bring on a competent plastic surgeon or refer the patient.
  2. Flat denial through lack of will (intentional disregard) will require stronger accountability measures because this behavior isn’t just carelessness, it’s malicious and predatory.  Intentionally violating the patient’s consent is never acceptable.

No one expects perfection, but there’s no question that patients should be able to expect to be treated in good faith by the medical professionals that care for them.  Hospital administrators and conscientious surgeons must stand up and speak out to protect their patients – they must acknowledge that flat denial is happening, that it’s unacceptable, and that it requires action on their part.  Women are being traumatized by this.  It needs to stop.

Walk Day is TOMORROW!

1023WalkDayIsTomorrow

Walk Day is TOMORROW!

Tuesday, October 23, 2018
1:00 – 2:00pm EST

Together, we CAN and WILL put an end to flat denial. Thank you for your support!

Join Not Putting on a Shirt to show your support for the cause – to put an end to flat denial and ensure that women receive cosmetic results we can live with following mastectomy.

There are two ways to participate:

1. IN PERSON

Meet at Willard Park in Cleveland, OH. Assemble 12:30-1:00pm at the blue NPoaS registration tent, at the center of the park, walk from 1-2pm, meet back at the tent for refreshments and networking from 2-3pm.

OCT2318WalkRouteMapYou can register at the tent on event day, or online: https://goo.gl/UiFstH  You can also find information at the Facebook Event page

2. ONLINE

Post your solidarity selfie, either wearing your NPoaS t-shirt or using your own words, to social media using the hashtag

#NotPuttingonaShirt

Facebook (@NotPuttingonaShirt)

Twitter (@not_shirt)

Instagram (@notputtingonashirt)

… or email your selfie to NotPuttingonaShirt@gmail.com and we will post it on our public FB page and to the blog.

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